...with some great friends...
...and I just can't seem to get back in the swing of things. So, I'm going to continue to take a little break. When I'm back, I will share all about vacation, including some of the gazillion pictures I took. It was a blast and Miles loved the beach, which made us so happy. Talk to you all soon.
Hi! I am a Mom of two precious boys ages 9 (soon to be 10), and 5, and a wife to a wonderful husband, and I have been officially fighting Lyme since last October. I have late state Lyme disease and it's in my central nervous system. I go out of state for treatment and started with orals but felt that I would eventually need a PICC line because my symptoms were so severe.
ReplyDeleteThis next part is hard for me to write without crying but my 9 year old has Lyme and Babesia Duncani. He has started treatment conservatively for the Lyme and is taking herbals for the Babesia. But he still gets these excrusciating migraines where he curls up in a ball crying and screaming, saying how bad his head hurts, and I am running to get a cold compress, Advil,...it is such a horrific awful helpless feeling. I feel I need to be doing more for my son- going to Dr. Bernui, Dr. Jones in CT, and there are some other options. His symptoms started showing up when he was around 6 or 7. But I know from what I learned from other mothers whose children have Lyme is you HAVE to treat it early- I just don't know whether to go the homeopathic route, or the antibiotic route, or combination.
The moms have just told me and really made it a point for me to understand that I must treat Logan before he hits puberty and/or his teen years. They have all said they wished they could go back because their childrens's symptoms were so much more debilitating and many are in their late teens and early twenties and still getting help and recovering slowly...better but it was very slow.
So that terrifies me and I am praying to our Lord to PLEASE tell me what to do with His precious child that He created and blessed my husband and I with. My heart and feelings are all over the place and I am trying to "be still and know that I am God". Whew! So, as I try to be still and wait and pray for guidance I am asking other believers such as yourself your thoughts, advice.
My son wasn't able to attend school last year because his headaches were too bad, he was exhausted, and just didn't feel well. I home schooled him the best I could. We don't know if our five year old has it. He still has to be tested. I may have passed the Lyme to my children, we don't know. If my youngest has the same antibodies as I do on his western blot, and also like his brothers, then it is pretty much certain I did.
I would appreciate your prayers. Your blog has been such a blessing and joy to read while I have been resting during treatments. You have a beautiful family! Oh, and my son loves dragons and dinosaurs, so that's where the email address comes from. I don't know if my email comes up automatically but if not please email me at fierydragon9@gmail.com. Thank you so much!